Fundraising for Colleen

Hello, friends! It’s amazing to see all the notifications of new subscribers, and I hope you enjoy reading and can gain some knowledge about Colleen, cerebral palsy and epilepsy.

Over the years, I’ve heard about stem cell therapy, but I didn’t think anything like it would be possible, at least for a number of years. Then, last year, I learned about a doctor in California using stem cells to treat cerebral palsy using cord blood stem cells. I also learned that Duke university was doing a stem cell study. (Horray!) Sadly, they were looking for participants that were under the age of 5, and Colleen will be 7 this October. This, left the option of traveling to California for the treatment, but it is still a costly procedure. I so wish it was covered by insurance, so even though Colleen couldn’t participate in the stem cell study at Duke, I can only pray that this week lead to greater medical understanding and more treatment (and hopefully, insurance coverage.)

Until then, we have been trying to save and fundraise for Colleen. We have our downpayment sent and appointment booked, but we’re still short of our fundraising goal. Any size donation is greatly appreciated and will go directly to this stem cell therapy cost for Colleen. We are extremely grateful for those who donate, share and pray for our little girl!

Click here to donate. ❤

www.youcaring.com/Colleendoingtheimpossible

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The epilepsy monster

It was almost like the epilepsy switch was turned off. Colleen had so much energy, her teachers started asking what we had started doing different. She was vocalizing, almost in a way she was expressing her opinion. And she had some much curiosity.

I’m realizing now that perhaps it was a growth spurt. This morning, I had to hold Colleen as she had myoclonic jerk after jerk. My heart aches for her in moments like these, as I hold her, exhausted in the aftermath. I had really started to hope that the stem cells and her growth were putting an end to the epilepsy monster.

But not yet. I keep fighting and I know to do that, I will have to do everything in my power. We have a donation towards her next stem cell treatment, so working towards saving enough for the next treatment. After much thinking, I started researching what she would need for a seizure alert dog. With how unpredictable the seizure activity is, I know this would be another way to make sure she’s kept as safe as possible.