Fundraising for Colleen

Hello, friends! It’s amazing to see all the notifications of new subscribers, and I hope you enjoy reading and can gain some knowledge about Colleen, cerebral palsy and epilepsy.

Over the years, I’ve heard about stem cell therapy, but I didn’t think anything like it would be possible, at least for a number of years. Then, last year, I learned about a doctor in California using stem cells to treat cerebral palsy using cord blood stem cells. I also learned that Duke university was doing a stem cell study. (Horray!) Sadly, they were looking for participants that were under the age of 5, and Colleen will be 7 this October. This, left the option of traveling to California for the treatment, but it is still a costly procedure. I so wish it was covered by insurance, so even though Colleen couldn’t participate in the stem cell study at Duke, I can only pray that this week lead to greater medical understanding and more treatment (and hopefully, insurance coverage.)

Until then, we have been trying to save and fundraise for Colleen. We have our downpayment sent and appointment booked, but we’re still short of our fundraising goal. Any size donation is greatly appreciated and will go directly to this stem cell therapy cost for Colleen. We are extremely grateful for those who donate, share and pray for our little girl!

Click here to donate. ❤

www.youcaring.com/Colleendoingtheimpossible

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Our stem cell journey: beginning

I’m titling this “beginning” because after receiving the stem cells, I’m hoping to begin documenting changes we see in Colleen!

We traveled out to California on Tuesday. The flight itself was very nice and I couldn’t have been happier with JetBlue and with how well Colleen did on the flight!

I wanted to fly out a little early, just in case. If anything for delayed or canceled, it would have made getting to her appointment impossible.

I want to talk about everything (traveling, about LA and so on, but I’ll save that!)

Her appointment was at 9am Thursday. We brought her emergency seizure meds, diazepam with us, and it could be used to help her relax when it came time for the IV. While waiting for the diazepam to work, we went over Colleen’s medical history in-depth while she had a microcurrent on her forehead and neck. I wish I could explain it better, but it can be programmed to send a microcurrent to specific areas of the body. In this case, we wanted it to go to areas of Colleen’s brain.

After getting her history, Dr. Shieh programmed it to be more specific to Colleen’s’ needs. It’s very interesting to hear different ways it can be effective!

Speaking of having Dr. Shieh explain things better than I ever could, you can listen to a podcast of him explaining stem cells!

Part one here.

Part two here.

This hardest thing about stem cell therapy is definitely placing the IV. I didn’t want to have to fly all the way back if we had to reschedule so I was praying Colleen was relaxed enough. After IV was in, she wasn’t very happy and I was so worried about that IV so I tried to held her arm in place. Frozen eventually came to the rescue and that calmed her down! Whew.

The actual stem cells were delivered in a box with dry ice. (The tube is about an inch and a half long!) They come with paperwork with all the tests that were done. After the placenta is being donated by new parents, everything goes through the same testing as say someone donating blood would.

Some of the stem cells were also spaying into Colleen’s nose. After that, IV was taken out, and everything was done!

Some people wait a few months for another treatment, others wait 6 months to a year. Colleen has had enough donated through her YouCaring so we can have more than one treatment! I’m not sure how long we will wait, to be honest! We are also trying to buy the microcurrent machine to help as well!

And now we wait and see. I’m so excited to see what will happen with Colleen and what changes we may see. You can be sure that I will sharing! ❤